Prayers Please

[wingryder92]

Yep...it sure does Bren. The neurologist and the hospitalist both said that it could be a Migraine Varient or Transient Global Amnesia. They both said (and my lung doc today at appt)
that most likely it'll never happen again but it could. All have said to be watchful for any sign of it again....I have told all of them the same thing....I didn't know it was happening the first time so I doubt that I'd know it the second time. They all agreed. The neuro doc said no riding for 6 months but can drive the car. Sorry but that does not compute in my brain. Why can you do one and not the other? Both are motor vehicles. I don't think I'll be waiting that long. Not near that long. I might make it to this weekend.
Debra
HAVE A SAFE RIDE

[ladyriders225]

It sure sounds like they have some answers for you. It all makes sense about the medications. I will keep you in my prayers and hope all stays well with you, that you do not experience that again. Take care, be safe.
Anna

[BtWoman]

I know this is a month later. How are you feeling Debra?
Yeah, that IS strange, can't ride but you can drive?!!! That reminded me of a diagnosis on me many years ago. I was 14. A doctor told my parents that I should not participate in any sports whatsoever, my body was too weak, no more skiing, bicycle riding, no gym, nothing. I forget exactly why. The same doc told my parents that the blood tests showed that I had been taking illicit drugs.
This was as inaccurate as you can get, on both counts! I didn't take drugs, I continued with gym classes, exercise regularly to this day, do things that give me a shot of adrenaline, etc. It's decades later and I haven't dropped dead, yet.
Not saying that you have been misdiagnosed, it just made me recall, that's all.
I hope you're doing fine.

[tlc]

@BtWoman, I have been miss diagnosed twice in my life so far (that I know of). I'm not saying that you, Debra have been either. I do know it can happen.

One of my miss-diagnoses was panic attacks/anxiety which turned out to be an extra heart beat. The other one was hepatitis "B". I went to a liver specialist and had two more tests both of which showed I had it but were kind of vague. I couldn't believe this since I have not been exposed to any of the risk factors. So I ended up paying for an expensive test that would be able to tell if I had ever in my whole life had it for certain. The test turned out to be negative. I finally have got the diagnose off of my medical record. It was so embarrassing to have to tell my dentist that I had hep B. My poor husband went through the series of shots for it and I also got a call from the State health department for diseases and control. How embarrassing!

I sure hope Debra that you don't suffer another attack and the meds are the answer. Time will tell I guess. May the "force" be with you Obi Wan Kenobi

[wingryder92]

Hey Ladies! Thank you for your kind thoughts. I agree with ya'll...I've been in the medical field for 35 yrs and I know that "they" can be wrong...regardless of where the mistake was made. Unfortunately there are so many places things can go wrong but it has improved. I have an appt with the neuro guy next Friday to get the results of the final test that was done two weeks ago. He did listen when I told him how I felt about the new med that he had given me so now I'm on a "childs" dose and I can tell a difference in the memory department. I was glad the he did listen and did something about it. My first neuro guy was "let's watch it for a while" well we watched for 9 months and I also had a med interaction from what he'd give me and when I told him about it his reply was "it can't do that". When I told him that when I stopped taking it the pain in my face went away. He just said that it was something else but not the drug I said was an interaction. "Can't happen" he said. Not a good thing to say to me since I know when I stopped taking the med the problem went away! I think I was really different from his other patients because I didn't want heavy duty drugs and didn't get any prescriptons for any either.
So far I'm still at the same place as before...all tests so far have been neg. No tumor, no stroke, no epilepsy, so am so thankful that all that type stuff was neg.
The med that I stopped taking had sideffects of confusion, memory loss, and others so considering that all tests have been negative I strongly believe that it was that medication. Of course I'm not happy with that doc either 'cause he told me "that can't happen". I just don't know how you can say it can't happen when it's listed on the papers from the pharmacy, in the PDR, on the web, etc. as sideffects.
Riding? Well when I was there I asked about riding the m/c with the sidecar and he said no. I do wonder why he said no to 3 wheels...the van only has 4. Well I haven't exactly followed that order very well. When he said drive I said ok and was on the m/c that following weekend. The first few times I went out we did make sure that someone was with me just in case I did have problems. I've not had any balance issues with the 2-wheeler or had any memory issues that anyone has noticed so I've got over a 1,000 miles for this month and still have some more time to ride.
I'll let ya'll know the results of the last test. But at this time it is still considered a migraine varient or transglobal transiet amnesia by the docs.
Sorry this got lengthy. And thank you again for your thoughts, prayers, & concern.
Debra
HAVE A SAFE RIDE

[BtWoman]

Well, we want to know Debra, so thank you for that lengthy explanation. I am glad you are feeling better. I think we really have to listen to our own bodies, too, when weighing what we are told by doctors, as I read in your letter. I'm like you, I will avoid taking meds when I can get away with it. I am rarely on any at all. I'd rather seek an alternative.